It is a long weekend (whoohoo!) and we are excited to celebrate surviving our first week of "our new normal." Tucker has done wonderful with his radiation...he knows the routine, has fun waving at his friends in beds next to him and enjoys putting his sticker on his chart after he is awake and ready to go home. There are 6 children getting proton there right now including Tucker. Please remember these children in your prayers as they are all battling cancer (mostly brain tumors) they are so precious it is devastating that so many babies are going through this. Their names are: Mercel, Joseph, Cruise, Luke and Gabriel.
Another reason to celebrate is that Tucker received his first round of chemo today and sat through it like a champ for 3 hours. We cuddled and watched movies. He did get sick tonight with diarrhea and vomiting but after taking his prescription for nausea he held down pretzels and sprite and played pretty normally. Hopefully tomorrow will be a good day for him. While we sat and waited for his drip to finish Tucker made his "Beads of Courage" necklace. Every patient starts with their name and then as they proceed with treatment they get a special bead for different procedures they have to endure. He will continually add beads until that beautiful day when he is in remission and he will end his necklace with a purple heart. Tucker's necklace is already pretty adorned with beads in just a month's time of procedures. It is a visual reminder of how much he has gone through and how courageous he indeed has been.
Our social worker has been working really hard to help us create ways to keep Tucker's spirits up. This week we enjoyed Jacksonville Zoo and Sunday we plan to take him to Sea World. He is so excited. Proton patients are free to visit the zoo as many times as they wish so I am sure it will be a weekly visit he is already asking to go back. Sea world offers deep discounts for families receiving medical treatment and we are so grateful that we have the opportunity to go and have a fun family day.
Next Thursday morning Tucker will be having a spinal tap before his radiation. This is to ensure that cancer cells have not spread to other parts of his spinal cord. Please help us pray that this is not the case. We pray that he has another week of successful radiation and that he continues to adjust well to his new normal. We pray for our safe travels around the city (jacksonville traffic = scary!)and peace within our hearts and minds that only God can give.
"The Lord is my strength and my shield; my heart trusts in him." Psalm 28:7
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